Day 12: Briefly explain to a healthy person what it is like to live with this illness.
*Please be patient with me, explaining pretty much anything, but especially personal stuff has, and continues to be, something I struggle with.*
The simple version I say to someone who asks about my illnesses is the tip of the iceberg on how bad it really is. Sadly, most don’t care about the long version; and I don’t say that to be mean. Most people are usually just worried about themselves and their lives. From my personal experience, most mainly want a paragraph sized answer and honestly, I suck at that. Most ask because ‘its polite’ or ‘just what everyone does’
All 3 are classified as ‘Invisible’ illnesses. All 3 are non fatal by themselves, but all three are also incurable.
Interstitial Cystitis is a disease where my bladder lining is slowly wearing away, exposing the nerves and causing severe pelvic and bladder pain.
Endometriosis is where everything my body should get rid of during my periods is unable to be flushed out, causing it to stick to my organs, causing adhesions and scar tissue, along with scarring the outside of my organs.
Pelvic Floor Dysfunction (PFD) can mean one of two things. Either the muscles in and around someone’s pelvis are too loose or too tight. In my case, my muscles are way too tight all the time, causing severe pelvic and back pain. I do weekly PT as well as daily stretches I’ve learned at PT and some I just looked up online.
I figured by the time I was a year or so into my ‘journey’, I would have been able to explain everything easily and with no problems. Here I am almost 7 years in and it’s still hard to deal with, trying to accurately explain my illnesses and my life is even harder for me.
But here I am. Trying to help even 1 person with my writing and experiences, as well as take steps forward in my own mental and emotional health. One day at a time. Sometimes even one hour at a time. Baby steps. I can do this. I know I can. Just please don’t give up on me.