Baby Steps…And A Challenge

Before I even begin writing this post, I’d just like to say thanks to all of you who have been reaching out to me and who continue reading my blog, (despite the spotty postings) lifting me up through this heartbreaking time in my life. It means the world ❤️ and I ask you to please be patient with me. I know this article may seem very jumbled and way longer compared to previous posts

Hey, internet family! I know I have been MIA for the last few months (that’s putting it lightly 😬) but I’m doing my best to get back into my writing in general, as well as on here. 

I recently got an email from a long time follower, who challenged me (as well as told me that they’ve been missing my blog posts and just wanted to check in with me to make sure I’m doing okay) to start writing again, and then sent me this link to a different bloggers article that had a huge list of questions to answer.

They told me that I need to go easier on myself as I’m dealing with a whole heck of a lot right now in my personal life. (Which, I admit, is the understatement of the year 🥺) and that if, and when, I decide to start writing again, to take baby steps and not force myself into rushing back to writing just because I worry about losing traffic on here because my postings have been spotty at best lately. 

I want to pause right here to say that when I originally started blogging, my goal wasn’t to become ‘popular’ or to earn money writing.

I started blogging for a few reasons; (but I won’t get into that right now as this is already a long post 😂; but let me know if that’s something you would like to find out about)

She went on to say that it probably wouldn’t be easy to just jump back into writing, so she said maybe the first step could be just answering questions on my blog and slowly work my way back up.

I think that is a great idea! Baby steps.

While I currently have the list she sent me in the email, I thought I’d ask if any of you have a question or two in mind.

Let me know down in the comments or you can reach me HERE. Facebook is the best way to reach me as I can respond a lot faster.

I will leave this post up for a week and please feel free to ask me anything you’d like to know 😊

I’m excited to see what the responses are from all of you 😊. In a week, if I haven’t received any responses, I’ll be filling out the questions from the article I linked above. There are over 300 questions though; so I will be answering them a handful at a time.

30 Day Chronic Illness Blogging Challenge: Day 16

Day 16: What is your favorite inspirational quote?

There are many quotes I love that have helped in many situations. I’ve even begun to make my own.

Two of my favorite quotes are ‘Its funny how day by day nothing changes; but when you look back, everything has changed.” And “A semicolon is used when the author could have ended the sentence; but chose not too. The author is you and the story is your life.”

You can check out more of my quotes HERE

30 Day Chronic Illness Blogging Challenge: Day 15

Day 15: What would you say to people newly diagnosed with this illness?

So many things came to mind as soon as I read the daily challenge but a few come to mind the most.

  • Don’t brush off symptoms-I can’t even count the number of times I ignored my symptoms and told myself I was just working too hard or not sleeping long enough; and on and on.
  • Keep a daily log of symptoms and activities-to help make your ‘journey’ go smoother to finding answers, having a log of every part of your life is a huge help.
  • Trust your gut-you know your body better than anyone. No one knows how you feel better than you.
  • And most of all, be your own advocate-So many times I’ve had doctors, nurses, friends and family intentionally or otherwise make me doubt what I’m going through. After all, if all the tests come back normal again and again, it must be in my head. Right?

Don’t give up. It can be easy to get frustrated when you spend days, months, or even years in and out of doctors offices, hospitals, having a million tests done, endless medications and a lot of trial and error to find the right treatment for you.

30 Day Chronic Illness Blogging Challenge: Day 10

Day 10: What little things makes your life easier?

There are so many little things that make my life easier with 3 incurable but non fatal chronic illnesses, but for now, I just want to share the two things that have helped above all else.

When I first began my ‘journey’ to find answers as to why I was suddenly so sick I couldn’t even get out of bed, I began blogging as a way to work through all the emotions I was feeling, as well as to maybe find others in my same situation. Best decision I made, although a uncomfortable one at first. I was and am a huge writer, and I have dozens of books filled with my words. But I had never up till that point shared the details of my personal life online.

I knew I had to do something to help me deal with everything that was happening. I couldn’t keep it bottled up inside and hope to come out unscarred emotionally.

So I started my blog, and the responses, while slow at first, rapidly became more and more. Others sharing their stories, stories of others they know or heard about, opinions and questions all for them, these strangers, to do what they could to help me find answers.

It still makes me emotional when I think about it. I never would have thought perfect strangers would actually try and help me. But I’m beyond glad they did. It helped me find answers, but most of all, it helped me deal with all I was feeling and having someone who’s there for you, even if they don’t have any sort of Chronic illness, is such a blessing. Someone to remind you that you are human. That your emotions and feelings are valid and natural.

Some of the best friends I have ever known I’ve never met face to face. Endless video chats and emails, yes.

I have a HUGE ‘unbiological family’ scattered all over the world, not just the US. Sharing my story was the best decision I have ever made. It forced me out of my comfort zone, to be vulnerable, to reach out to the nameless people online for support and answers.

Now, almost 7 years later, I’m still receiving emails from people asking how I’m doing and if there’s anything they can do to help. Even more shocking, at least from my perspective, I still receive countless emails, chats, phone calls from my followers and people who came across my blog one way or another telling me how much my writing has helped them. How they hope I never stop writing.

I have always loved to write, even as a young child. But it never occurred to me that my writing was actually going to help others. That by putting words on paper, (or in my case, online) I could inspire someone I don’t even know.

I always thought there was never going to be anything good about getting sick, getting on disability, unable to work, losing countless friends and family due to my illnesses and all that comes with it. But I’m so proud to say I was wrong.

You may have come across a page on my blog called Quotes By Me. After my ‘Journey’ began and I had to fill up every single day with anything just to prevent me from going crazy. I began making custom quotes, at first just ones I love. Then some for different situations (Dealing with life, loss, friendship, etc.) I began receiving requests for a specific quote someone wanted to see me make for them.

That has been an amazing idea that I wanted to see if I could push myself further. So I then began to make Spoonie Thoughts And Advice, Movie Quotes, and Song Lyric quotes. I am still in the process of adding more catagories, as well as adding them to my blog.

Keep checking back for new content in each category. Please don’t hesitate to contact me if you have something you’d like me to make, or even if you just need to rant and I listen without judgement. I only give advice if someone asks for it. Otherwise I just listen.

My contact information can be found on my ‘About Us‘ page under Karley Kay. My email and Facebook are usually the ones most people use to reach out to me.

If you reach out to me, I will always reach back to you. You’re not alone. You matter. Always. Don’t ever let someone tell you differently. You got this. I believe in you.

Brain Fog Confession/Rant

NOTE: When I began typing this, it was just going to be the first paragraph; a short funny brain fog moment to share with some of the Chronic Illness/Pain/Brain Fog support groups I belong too. Then the words just started pouring out of me. Shared it with a friend to make her laugh and decided to keep on typing and see where it went. Out came this article.

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