Challenge

As you know, I’ve once again gone MIA for a while, 😬 BUT I’m back and ready to answer the questions from my previous post “Baby Steps…And A Challenge.”

As this list of questions has over 200+ to answer, I’m only going to answer a few at a time.

Ready? Let’s go!


What is the funniest name you have actually heard used in the real world? Cheri Pitt

What is the sexiest name you can imagine? 

What is the least sexy name you have ever heard? Bert

What sport would be the funniest to add a mandatory amount of alcohol to? Tennis

If you could replace all of the grass in the world with something else, what would it be? Squishmallows because of all the million stuffed animals I have, I instantly fell in love with the adorableness of them, as well as the material they are made from. (Don’t worry, I didn’t bring it up to not show you)

If you had to choose one animal to help you win a fight, which animal would you choose?Cape Buffalo “if an individual (or its calf) is threatened or wounded, they become the incarnation of their nickname: Black Death.”

If you could morph two animals to make one super animal, what two animals would you choose? Why? I have always loved the story of the tortoise and the hair, still one of my favorites even now in my mid 20s. Searching for a picture to hoping to explain it better, I found this and it was too good and cute not to add 😍

What movie would be greatly improved if it was made into a musical? I think The Ghost And Mr Chicken would be hilarious as a musical; although I’m not sure it would make much sense the more I think about it 😂

If you could choose one musical artist to marry but could never listen to their music again, who would it be? I honestly am coming up blank on this question. I am addicted to music, I even used to sleep with my radio on and tuned to country music and that’s how I would get to sleep every night. But at the same time, while I love music and lyrics, I don’t really know much about certain artists and their lives outside of the music world. The music matters to me, not necessarily what goes on in their lives outside of their music; and I know how that sounds, I do. But it’s the truth. 

If your five-year-old self suddenly found themselves inhabiting your current body, what would your five-year-old self do first? Probably end up screaming bloody murder, honestly! I know what you must be thinking “She’s really lost her marbles or is avoiding the real answer for whatever reason. Here’s the thing-I’m not crazy or avoiding the question. My every day life is someone else’s worst nightmare. My pain tolerance is low, chronic pain has reaked havoc on my body for years. As a kid, my tolerance was even lower than it is now at almost 26 years old. 

What is something that everyone looks stupid doing? Biting their top lip 🤣

Have you ever sent a text message to the wrong person? Way too many times 🤦

What are three items you could buy together at the grocery store to make the cashier laugh? Lube, Summer sausage and Enima kit 😬

Have you ever caught something on fire while you were cooking? Thankfully, no.

What is something that is really popular now, but in 5 years everyone will look back on and be embarrassed by? Fidget spinners. In my opinion, there are a million other things I would try for things like anxiety or boredom before I’d use something like that but I know they are very popular for a variety of reasons. 

 

 

Baby Steps…And A Challenge

Before I even begin writing this post, I’d just like to say thanks to all of you who have been reaching out to me and who continue reading my blog, (despite the spotty postings) lifting me up through this heartbreaking time in my life. It means the world ❤️ and I ask you to please be patient with me. I know this article may seem very jumbled and way longer compared to previous posts

Hey, internet family! I know I have been MIA for the last few months (that’s putting it lightly 😬) but I’m doing my best to get back into my writing in general, as well as on here. 

I recently got an email from a long time follower, who challenged me (as well as told me that they’ve been missing my blog posts and just wanted to check in with me to make sure I’m doing okay) to start writing again, and then sent me this link to a different bloggers article that had a huge list of questions to answer.

They told me that I need to go easier on myself as I’m dealing with a whole heck of a lot right now in my personal life. (Which, I admit, is the understatement of the year 🥺) and that if, and when, I decide to start writing again, to take baby steps and not force myself into rushing back to writing just because I worry about losing traffic on here because my postings have been spotty at best lately. 

I want to pause right here to say that when I originally started blogging, my goal wasn’t to become ‘popular’ or to earn money writing.

I started blogging for a few reasons; (but I won’t get into that right now as this is already a long post 😂; but let me know if that’s something you would like to find out about)

She went on to say that it probably wouldn’t be easy to just jump back into writing, so she said maybe the first step could be just answering questions on my blog and slowly work my way back up.

I think that is a great idea! Baby steps.

While I currently have the list she sent me in the email, I thought I’d ask if any of you have a question or two in mind.

Let me know down in the comments or you can reach me HERE. Facebook is the best way to reach me as I can respond a lot faster.

I will leave this post up for a week and please feel free to ask me anything you’d like to know 😊

I’m excited to see what the responses are from all of you 😊. In a week, if I haven’t received any responses, I’ll be filling out the questions from the article I linked above. There are over 300 questions though; so I will be answering them a handful at a time.

30 Day Chronic Illness Blogging Challenge: Day 15

Day 15: What would you say to people newly diagnosed with this illness?

So many things came to mind as soon as I read the daily challenge but a few come to mind the most.

  • Don’t brush off symptoms-I can’t even count the number of times I ignored my symptoms and told myself I was just working too hard or not sleeping long enough; and on and on.
  • Keep a daily log of symptoms and activities-to help make your ‘journey’ go smoother to finding answers, having a log of every part of your life is a huge help.
  • Trust your gut-you know your body better than anyone. No one knows how you feel better than you.
  • And most of all, be your own advocate-So many times I’ve had doctors, nurses, friends and family intentionally or otherwise make me doubt what I’m going through. After all, if all the tests come back normal again and again, it must be in my head. Right?

Don’t give up. It can be easy to get frustrated when you spend days, months, or even years in and out of doctors offices, hospitals, having a million tests done, endless medications and a lot of trial and error to find the right treatment for you.

30 Day Chronic Illness Blogging Challenge: Day 14

Day 14: Give 5 things you are grateful for

1. My amazing boyfriend. He encourages me, loves me even when I’m not being lovable, doesn’t let me talk bad about myself, always tells me I’m beautiful even when I can’t face myself in the mirror. He listens to me say what I’ve probably already said a million times. He’s patient. He immediately drops whatever he’s doing just to hold me for a minute and kiss my forehead. I could go on and on ❤️ We first met when I was 14. We’ve both been through hell many times in the years apart from each other. But, now at 25, I’m back right where I belong.

2. I’m beyond grateful for the chance to be in my little sisters life again and actually get to have girl’s nights out. We never really had the chance to get close as she was 3 when I left and moved out of the state and in the care of my mom’s parents till my senior year. She is now here for college and told me she doesn’t care if I suck at being a big sister. That all she cares about is that I do my best ❤️

3. I’m grateful for the “Spoonie” community. A ‘joke’ that goes around the Spoonie groups online is ‘Want to know who truly cares about you? Get diagnosed with a chronic illness.’ not a funny joke, but it hits home with almost all of us, especially those who have little to no support since their own ‘journeys’ began.

4. I’m grateful for the amazing people in my life who love me despite the struggles I have. Who love me even when I’m not loveable. Who are there any time day or night I can call even if I just need to cry and have them listen ❤️

5. I’m grateful for the chance to put myself and my writing out there for the world to see. If my writing can help even 1 person, I’ll pour out my heart and soul. All I’ve ever wanted since I started blogging was to help people know they don’t have to go through it alone anymore. I want someone to read something I’ve written, and for a second, just a second, they know they will make it. They know they can keep pushing on, even if it’s the hardest thing they’ve ever had to do.

30 Day Chronic Illness Blogging Challenge: Day 12

Day 12: Briefly explain to a healthy person what it is like to live with this illness.

*Please be patient with me, explaining pretty much anything, but especially personal stuff has, and continues to be, something I struggle with.*

The simple version I say to someone who asks about my illnesses is the tip of the iceberg on how bad it really is. Sadly, most don’t care about the long version; and I don’t say that to be mean. Most people are usually just worried about themselves and their lives. From my personal experience, most mainly want a paragraph sized answer and honestly, I suck at that. Most ask because ‘its polite’ or ‘just what everyone does’

All 3 are classified as ‘Invisible’ illnesses. All 3 are non fatal by themselves, but all three are also incurable.

Interstitial Cystitis is a disease where my bladder lining is slowly wearing away, exposing the nerves and causing severe pelvic and bladder pain.

Endometriosis is where everything my body should get rid of during my periods is unable to be flushed out, causing it to stick to my organs, causing adhesions and scar tissue, along with scarring the outside of my organs.

Pelvic Floor Dysfunction (PFD) can mean one of two things. Either the muscles in and around someone’s pelvis are too loose or too tight. In my case, my muscles are way too tight all the time, causing severe pelvic and back pain. I do weekly PT as well as daily stretches I’ve learned at PT and some I just looked up online.

I figured by the time I was a year or so into my ‘journey’, I would have been able to explain everything easily and with no problems. Here I am almost 7 years in and it’s still hard to deal with, trying to accurately explain my illnesses and my life is even harder for me.

But here I am. Trying to help even 1 person with my writing and experiences, as well as take steps forward in my own mental and emotional health. One day at a time. Sometimes even one hour at a time. Baby steps. I can do this. I know I can. Just please don’t give up on me.

30 Day Chronic Illness Blogging Challenge: Day 11

Day 11: Why do you believe you have this illness? Bad luck, a higher power, karma, or something else?

Personally, I believe that by getting sick and all that comes with it, is to strengthen me. To force me to reach out to others. To believe in myself again.

Ask my family and friends, and their answers are all the complete opposite. My family basically has the idea that ‘my choices’ made me sick. That because I moved back here the day of my 18th birthday, stopped going to church, married someone they didn’t approve of, and generally didn’t continue with the ‘right ways’ of life they believe in, that’s why I’m sick.

This is something I’ve struggled with for years, I still struggle with this every single day. When my Grandma got diagnosed with breast cancer 6 years ago, she was doing everything right, eating healthy, natural remedies etc. But she still got sick and she is still going to die. Recently my mom got diagnosed with Chrohns Disease. In both those instances, it was ‘just what happened.’ not that there choices and actions made them sick.

I struggle to be the bigger person, to be there for them if they need me without letting my feelings get in the way of our relationship.

It took a few years, but one day it hit me. All the time and energy I was spending just to try and get them to believe me, to see I’m not faking or just wanting attention, was doing no good. I was angry that they couldn’t or wouldn’t understand. But all the time I spent being angry and hurt damaged some of the time I have had with them. So now, I just try and be as ‘normal’ as possible with them and I avoid talking about my illnesses. I just try to keep in contact with them the best I can.

My sister recently moved here for college and I feel so blessed to have the chance to finally have the sister relationship I never had the chance to have before.

Long story short, when I was 5 my dad married my step mom. When I was 10 they sent me a state away with her parents to be raised until I graduated. At the time I couldn’t see how that was the best thing they could have done. All I could see is after 5 years they just didn’t want me anymore.

My little sister that is here for college, she was 3 when I moved away. And as much as I called and spent time talking with her and my other 3 siblings, it wasn’t the same.

I moved back with them right before my senior year of high school. I spent that year doing the best I could to form a relationship with my siblings.

The day I turned 18, they packed me up and drove me back here. Once again, trying to have a relationship just by occasional phone calls and texting whenever they actually got cell service in the mountains where they live, it wasn’t the same.

We now spend most of the day sending Snapchat back and forth, texting, and two sister outings so far. The first was a week ago. We went to the movies. Tonight, we attempted to go ice skating after eating at Pizza Pie Cafe.

Let me tell you, I trip and fall on flat ground, with nothing but air in my way 🤣. I only fell once and I’m very proud of that fact. She just made it look beyond easy, skating loop and after loop while I had to take continuous breaks to breathe and rest my aching feet.

But I loved every minute of it. I can’t wait to see what we do next 🥰😂

30 Day Chronic Illness Blogging Challenge: Day 10

Day 10: What little things makes your life easier?

There are so many little things that make my life easier with 3 incurable but non fatal chronic illnesses, but for now, I just want to share the two things that have helped above all else.

When I first began my ‘journey’ to find answers as to why I was suddenly so sick I couldn’t even get out of bed, I began blogging as a way to work through all the emotions I was feeling, as well as to maybe find others in my same situation. Best decision I made, although a uncomfortable one at first. I was and am a huge writer, and I have dozens of books filled with my words. But I had never up till that point shared the details of my personal life online.

I knew I had to do something to help me deal with everything that was happening. I couldn’t keep it bottled up inside and hope to come out unscarred emotionally.

So I started my blog, and the responses, while slow at first, rapidly became more and more. Others sharing their stories, stories of others they know or heard about, opinions and questions all for them, these strangers, to do what they could to help me find answers.

It still makes me emotional when I think about it. I never would have thought perfect strangers would actually try and help me. But I’m beyond glad they did. It helped me find answers, but most of all, it helped me deal with all I was feeling and having someone who’s there for you, even if they don’t have any sort of Chronic illness, is such a blessing. Someone to remind you that you are human. That your emotions and feelings are valid and natural.

Some of the best friends I have ever known I’ve never met face to face. Endless video chats and emails, yes.

I have a HUGE ‘unbiological family’ scattered all over the world, not just the US. Sharing my story was the best decision I have ever made. It forced me out of my comfort zone, to be vulnerable, to reach out to the nameless people online for support and answers.

Now, almost 7 years later, I’m still receiving emails from people asking how I’m doing and if there’s anything they can do to help. Even more shocking, at least from my perspective, I still receive countless emails, chats, phone calls from my followers and people who came across my blog one way or another telling me how much my writing has helped them. How they hope I never stop writing.

I have always loved to write, even as a young child. But it never occurred to me that my writing was actually going to help others. That by putting words on paper, (or in my case, online) I could inspire someone I don’t even know.

I always thought there was never going to be anything good about getting sick, getting on disability, unable to work, losing countless friends and family due to my illnesses and all that comes with it. But I’m so proud to say I was wrong.

You may have come across a page on my blog called Quotes By Me. After my ‘Journey’ began and I had to fill up every single day with anything just to prevent me from going crazy. I began making custom quotes, at first just ones I love. Then some for different situations (Dealing with life, loss, friendship, etc.) I began receiving requests for a specific quote someone wanted to see me make for them.

That has been an amazing idea that I wanted to see if I could push myself further. So I then began to make Spoonie Thoughts And Advice, Movie Quotes, and Song Lyric quotes. I am still in the process of adding more catagories, as well as adding them to my blog.

Keep checking back for new content in each category. Please don’t hesitate to contact me if you have something you’d like me to make, or even if you just need to rant and I listen without judgement. I only give advice if someone asks for it. Otherwise I just listen.

My contact information can be found on my ‘About Us‘ page under Karley Kay. My email and Facebook are usually the ones most people use to reach out to me.

If you reach out to me, I will always reach back to you. You’re not alone. You matter. Always. Don’t ever let someone tell you differently. You got this. I believe in you.

30 Day Chronic Illness Blogging Challenge: Day 8

Day 8: Where do you see yourself in 5 years time?

In five years, I hope to be able to start our family. Two weeks ago tomorrow I had my second Endometriosis removal surgery (also called Laparoscopy)

More on that in a later post, so keep checking back!

I also hope to go to college and pursue a degree working with special needs children. I also hope to finally begin a face to face ASL (American Sign Language) with others who are also learning. I have been trying to teach myself for a few years with YouTube, LifePrint and as well as my many books.

Some of my favorite people to learn from on YouTube specifically are Bill Viscars and TheDailySign.

For now, I’m doing my best to take life one day at a time and just enjoy my days the best I can.

Wish me luck!!

30 Day Chronic Illness Blogging Challenge: Day 7

Day 7: What was the biggest realization you have had?

I’ve been on my Chronic Illness ‘journey’ for 7 years this April and it’s taken me this long but I finally found a GOOD thing about having multiple (3) Chronic Illnesses.

I know what you may be thinking. “How in the world is there something good about having incurable illnesses?!” But it’s true. It’s taken me this long to find a good thing about my ‘journey’ and it came out of nowhere and hit me hard as I feel like I should have seen it long before now.

When I first began my ‘journey’ to find answers, I started this blog as a way to deal with it and hopefully have some support from others in my same situation.

Now, almost 7 years later, I have a huge ‘family’ scattered around the world who understand that part of my life and support me no matter what.

And to me, that’s everything ❤️

30 Day Chronic Illness Blogging Challenge: Day 1

Day 1: Introduce yourself. What illnesses do you have? How long have you had them?


My name is Karley and I have been diagnosed with Interstitial Cystitis, Endometriosis, Pelvic Floor Dysfunction, Anxiety and Depression. I began my ‘journey’ in 2012. Four months after graduating high school and getting married to my now ex husband.

It seems to have hit out of nowhere, but when I began my ‘journey’ to find answers, my doctor said I had to have been symptomatic but unaware. I couldn’t see it at first, but I brushed all my symptoms away as just a part of ‘getting older’ and working long hours.

Until one day, I couldn’t ignore it anymore.

One morning before I went to work, I woke up and immediately started bawling, curled into a fetal position, holding my stomach.

The next few weeks, it happened again and again. I began missing a ton of work and finally I began going on the merry-go-round of medical tests, medications, needle pricks, lab work and, finally, multiple surgeries.

That was almost 8 years ago. Yet it feels like I’ve lived multiple life times.

I’ve been asked again and again why I share my story online for everyone to see if it’s hard to talk about.

That’s exactly why.

I know what it’s like to go through your ‘journey’ with little to no support and I never want you to go through what you and I have, alone. As hard as it has been for me to open up, especially knowing thousands of people know and read my story regularly, I regret nothing. I would do this a million times over.

Why? Because even just hearing 1 story from a follower of how my blog has helped them makes it all worth it to me.